While this book was originally published over a decade ago, I am finally coming around to reading it. This book was on a list of recommended reading for a Diagnostics class I took during my master’s degree program. At the time, I did not have the time to devote to the text. However, as a young clinician; I found it important to go review the message so many wise professors and professionals have shared with me over the years.
I have a particular interest in autobiographical stories of mental health conditions. As a clinician, I believe that gaining an understanding of how a person with a condition experiences that condition can only improve my understanding of my clients and society at large. Within this text, I was struck by the explicit description of the internal experiences of schizophrenia. While I have read other autobiographical accounts by people with schizophrenia, this piece provided an explicit account which others did not detail. I found it helpful in providing an explicit description of how disorganized and delusional thinking are experienced. Additionally, it emphasized that not all psychosis is correlated to visual and/or auditory hallucinations.
The second aspect which struck me about this text was the callous indifference of the treating professionals. Reading about mental health professionals treating clients with the same amount of stigma and disdain as others on the street is very disheartening. You would think professionals within the field would be more understanding given their professional knowledge. While I would like to believe that the profession has improved in the last three to four decades, I am not sure. This can particularly be seen in the types of treatment modalities offered to patients with specific diagnoses. In this example, the author details how crucial talk therapy had been to her overall success while recognizing that it would not be typically offered to a patient with her same diagnosis. Are we doing our clients a disservice by only providing services indicated by their diagnosis? Understanding that mental health conditions do not present with homogenous symptoms, should we be offering homogenous treatment based on diagnosis?
Lastly, I was struck by the explicit description and experience of mental health stigma both within treatment and outside of treatment. In the book, the author describes the several decades long battle within herself to accept her mental health condition. While the author goes on to discuss the importance of this battle as crucial to her long term understanding of her condition, I could not help but wonder if she would have arrived at the same level of self-awareness if she had not experienced the callous treatment from her treatment team.
While I found the expressions of mental health stigma by those outside of the mental health profession to be less surprising, it emphasized how difficult it is to share mental health problems with friends, colleagues, family, and intimate partners. As a clinician, it reminds me that we cannot always assume our clients have support systems especially for clients who require a great deal of support.
Overall, I found this book extremely beneficial towards increasing my knowledge of schizophrenia as well as the experience of a person with a mental health condition. However; I found it most beneficial as a mirror to myself and the mental health field. This book highlights that while me may be in the era of “trauma informed care” we may not be providing the level of care that our clients deserve.